Welcome to the Misfit Forum! If you're a member, please log in. If you aren't, please make an account and join us to see all the other features that are exclusive to members only. Enjoy your stay and please feel free to contact any of our moderators or administrators if you have questions!



 
HomeCalendarGalleryFAQSearchMemberlistRegisterLog in

Chronic Illness Chat and Support 5 3 2
Share | 
 

 Chronic Illness Chat and Support

View previous topic View next topic Go down 
AuthorMessage
Ellipsis
Admin


Posts: 399
Reputation: 16
Join date: 2011-01-26
Age: 18
Location: Neverland

PostSubject: Chronic Illness Chat and Support   Thu Feb 17, 2011 1:11 pm

So being chronically ill myself (but without diagnosis and decent treatment, so I feel weird) I thought I'd start a thread where people can discuss such things if they suffer from them. Or learn more about them. Anything like that.

First, I guess I'll define chronic illness for those who may not be so sure what the term means, or what such an illness entails. So here are a few of the best definitions I could find.

Quote:

In medicine, a chronic disease is a disease that is long-lasting or recurrent.

An illness that lasts for a long time, often a lifetime, whereas an acute illness comes on suddenly and resolves in a short amount of time.

A condition that lasts a year or longer, limits activity, and may require ongoing care.


To put it simply, a chronic illness is any illness that is long lasting, or incurable. They can often be treated, but never completely cured. There are a lot of illnesses like that. Fibromyalgia, arthritis, lupus, and even a lot of mental illnesses are considered chronic, because things like depression and eating disorders are rarely CURED, and most people have to stay on top of things like that they're whole lives.

While I don't have a diagnosis currently, I started suffering from debilitating symptoms about four years ago, which have gotten progressively worse, and are sort of ruining my life. Among these are widespread pain, chronic headaches, anxiety, and depression. I have lot of other smaller symptoms as well, but those are the big ones that I can think of right now.

So does anyone else here suffer from any chronic conditions?
Feel free to talk about anything pertaining to the subject here.
Back to top Go down
http://www.misfitforum.com
BatteredAngel
Moderator


Posts: 219
Reputation: 10
Join date: 2011-02-07
Age: 24
Location: Madera, California

PostSubject: Re: Chronic Illness Chat and Support   Thu Feb 17, 2011 5:18 pm

I have very severe depression, labeled under "dysthymia". I've actually had severe depression/ suicidal tendencies for the last 12 years. I guess you could say its chronic. Not really sure :/ That's kinda the reason I disappeared for several days. I just couldn't find the will to move.

I do suffer from chronic migraines. They never haven't figured out what causes the migraines but I'm currently on an anti-epilepsy medication that helps for the most part.

_________________
Red for the blood of life
White for the purity of Spirit
Black to repel all negativity

Water Cleanse and renews
Water washes away pain and sorrow.
Water blesses and creates harmony.


Back to top Go down
HeyThere
Moderator


Posts: 213
Reputation: 9
Join date: 2011-01-26
Age: 17
Location: Virginia D:

PostSubject: Re: Chronic Illness Chat and Support   Thu Feb 17, 2011 9:13 pm

BatteredAngel wrote:
I have very severe depression, labeled under "dysthymia". I've actually had severe depression/ suicidal tendencies for the last 12 years. I guess you could say its chronic. Not really sure :/ That's kinda the reason I disappeared for several days. I just couldn't find the will to move.

I do suffer from chronic migraines. They never haven't figured out what causes the migraines but I'm currently on an anti-epilepsy medication that helps for the most part.



I GET MIGRAINES FROM FUCKING HELL. IVE HAD THE SAME MIGRAINE I HAVE RIGHT NOW FOR 8 FUCKING HOURS. my longest was 3 days. my medicine doesnt work anymore. mines genetic- my sis and dad have them too. BUT THERE FUCKING MEDICINE FUCKING WORKS.

pardon my language.

_________________
Only a Sith deals in absolutes. -Obi-Wan Kenobi
-
A Jedi shall not know anger. Nor hatred. Nor love.
Back to top Go down
Online
BatteredAngel
Moderator


Posts: 219
Reputation: 10
Join date: 2011-02-07
Age: 24
Location: Madera, California

PostSubject: Re: Chronic Illness Chat and Support   Thu Feb 17, 2011 9:31 pm

HeyThere wrote:
BatteredAngel wrote:
I have very severe depression, labeled under "dysthymia". I've actually had severe depression/ suicidal tendencies for the last 12 years. I guess you could say its chronic. Not really sure :/ That's kinda the reason I disappeared for several days. I just couldn't find the will to move.

I do suffer from chronic migraines. They never haven't figured out what causes the migraines but I'm currently on an anti-epilepsy medication that helps for the most part.



I GET MIGRAINES FROM FUCKING HELL. IVE HAD THE SAME MIGRAINE I HAVE RIGHT NOW FOR 8 FUCKING HOURS. my longest was 3 days. my medicine doesnt work anymore. mines genetic- my sis and dad have them too. BUT THERE FUCKING MEDICINE FUCKING WORKS.

pardon my language.


O.O' All I can really say is try a new medication.. I'm on topamax.. :/

_________________
Red for the blood of life
White for the purity of Spirit
Black to repel all negativity

Water Cleanse and renews
Water washes away pain and sorrow.
Water blesses and creates harmony.


Back to top Go down
itsalovestory0x



Posts: 161
Reputation: 0
Join date: 2011-01-27
Age: 19
Location: New York

PostSubject: Re: Chronic Illness Chat and Support   Fri Feb 18, 2011 8:18 am

My depression/anxiety are definitely chronic. I hate having no support from hardly anyone around me. My poor excuse of doctor NEVER gives me real help even though I tell her what's wrong with me. It's always "oh you'll feel better if you exercise". I DO exercise and this past time I told her I have been; she told me to increase the exercise to 4-5 times a week. She also constantly tells me to lose weight and that just makes me feel even worse, especially since I'm trying to do that.

Back to top Go down
http://glittershadow.xanga.com/
Ellipsis
Admin


Posts: 399
Reputation: 16
Join date: 2011-01-26
Age: 18
Location: Neverland

PostSubject: Re: Chronic Illness Chat and Support   Fri Feb 18, 2011 12:37 pm

BatteredAngel wrote:
I have very severe depression, labeled under "dysthymia". I've actually had severe depression/ suicidal tendencies for the last 12 years. I guess you could say its chronic. Not really sure :/ That's kinda the reason I disappeared for several days. I just couldn't find the will to move.

I do suffer from chronic migraines. They never haven't figured out what causes the migraines but I'm currently on an anti-epilepsy medication that helps for the most part.


I'm sorry. It sucks. I was diagnosed with MDD (Major Depressive Disorder) myself a few years back, but now they're thinking it's a symptom of whatever physical illness I may have. Of course we don't really know, so who could ever tell? But it definitely suck. I have a lot of days like that lately. Though, more recently, I suppose I have more days where I can't move for the pain, but before that was a big issue for me, I had plenty of days when I couldn't get out of bed because I couldn't find the motivation. I still do occasionally, but I suppose everything else going on for me has sort of been a distraction. And it motivates me in some ways. If I don't get up, I can't have pain meds, if I can't have pain meds, I'll just suffer. If I lay in bed all day, I'll be too stiff to move on my own after a while. >.< So that sort of has solved a lot of that issue for me. Because there are pretty severe consequences if I don't get up.
Though, I wouldn't recommend a physical ailment like that as a way to motivate yourself. XD

I also have "migraines" I think, though while sometimes they'll be textbook (light/sound sensitivity, nausea, vomitting. etc.) sometimes I'll only ever have pain, which technically supposedly is not a migraine, so there may be some other cause for my headaches, we're unsure. But those also are terrible. I'm on pamelor right now, and it's not working well. I've been wanting to try Topamax, so I might ask about that next time I see my internist. Or when I go to see the neurologist.


HeyThere wrote:


I GET MIGRAINES FROM FUCKING HELL. IVE HAD THE SAME MIGRAINE I HAVE RIGHT NOW FOR 8 FUCKING HOURS. my longest was 3 days. my medicine doesnt work anymore. mines genetic- my sis and dad have them too. BUT THERE FUCKING MEDICINE FUCKING WORKS.

pardon my language.


I hate those sorts of headaches. Technically, I've had headache constantly since I was ten. Not even exaggerating. XD I could set a world record I bet! Maybe not. >.> But still. It's usually not too bad. When I get migraine type headaches I can't touch, I sometimes go to the ER. Usually only when it gets to being so bad I'm delirious or can't stop crying, or both. But you could always try that. They'll usually give you IV anti-emetic and then a strong painkiller through IV. It should at least take the edge off for most people. Or at very least make you high. XD (The first time I went to the ER for one, they gave me demorol, which I guess I'm a lightweight when it comes to such drugs, because one dose and I was like incredibly high... it was hilarious. Though... I don't condone drug seeking, it's a funny side effect sometimes.) But if it gets bad, you should try that.

What drugs have you tried for migraines so far?


itsalovestory0x wrote:
My depression/anxiety are definitely chronic. I hate having no support from hardly anyone around me. My poor excuse of doctor NEVER gives me real help even though I tell her what's wrong with me. It's always "oh you'll feel better if you exercise". I DO exercise and this past time I told her I have been; she told me to increase the exercise to 4-5 times a week. She also constantly tells me to lose weight and that just makes me feel even worse, especially since I'm trying to do that.


O.O Sounds like you need a new doctor. Anyway you could find one? She sounds like a bitch, and in my experience, having doctors like that, they eventually make something worse one way or another.
I also hate that being doctors answers to everything. Some of my doctors at this point have told me I SHOULDN'T overexert myself, but others tell me it will cure me (which is so not true; this all started for me when I WAS an avid athlete, several hours of practice everyday, so don't tell me my illness was caused by me not exercising, stupid. >.>) and it's the most annoying thing in the world. For some reason it seems like half of doctors no matter what specialty INSIST that exercise is the cure-all for fucking ANYTHING. And come on... even I'm not THAT stupid. I could list probably a hundred things it's NEVER the cure for, and with things like headaches, pain, mental illnesses, it's a possible treatment in SOME cases, but those things aren't "one size fits all", it's not gonna be the thing to cure everyone.

Seriously though, you need to find a new doctor... if she's not doing anything for you, it's probably not worth wasting your time with her.
Back to top Go down
http://www.misfitforum.com
BatteredAngel
Moderator


Posts: 219
Reputation: 10
Join date: 2011-02-07
Age: 24
Location: Madera, California

PostSubject: Re: Chronic Illness Chat and Support   Fri Feb 18, 2011 1:32 pm

Ellipsis wrote:
BatteredAngel wrote:
I have very severe depression, labeled under "dysthymia". I've actually had severe depression/ suicidal tendencies for the last 12 years. I guess you could say its chronic. Not really sure :/ That's kinda the reason I disappeared for several days. I just couldn't find the will to move.

I do suffer from chronic migraines. They never haven't figured out what causes the migraines but I'm currently on an anti-epilepsy medication that helps for the most part.


I'm sorry. It sucks. I was diagnosed with MDD (Major Depressive Disorder) myself a few years back, but now they're thinking it's a symptom of whatever physical illness I may have. Of course we don't really know, so who could ever tell? But it definitely suck. I have a lot of days like that lately. Though, more recently, I suppose I have more days where I can't move for the pain, but before that was a big issue for me, I had plenty of days when I couldn't get out of bed because I couldn't find the motivation. I still do occasionally, but I suppose everything else going on for me has sort of been a distraction. And it motivates me in some ways. If I don't get up, I can't have pain meds, if I can't have pain meds, I'll just suffer. If I lay in bed all day, I'll be too stiff to move on my own after a while. >.< So that sort of has solved a lot of that issue for me. Because there are pretty severe consequences if I don't get up.
Though, I wouldn't recommend a physical ailment like that as a way to motivate yourself. XD

I also have "migraines" I think, though while sometimes they'll be textbook (light/sound sensitivity, nausea, vomitting. etc.) sometimes I'll only ever have pain, which technically supposedly is not a migraine, so there may be some other cause for my headaches, we're unsure. But those also are terrible. I'm on pamelor right now, and it's not working well. I've been wanting to try Topamax, so I might ask about that next time I see my internist. Or when I go to see the neurologist.


HeyThere wrote:


I GET MIGRAINES FROM FUCKING HELL. IVE HAD THE SAME MIGRAINE I HAVE RIGHT NOW FOR 8 FUCKING HOURS. my longest was 3 days. my medicine doesnt work anymore. mines genetic- my sis and dad have them too. BUT THERE FUCKING MEDICINE FUCKING WORKS.

pardon my language.


I hate those sorts of headaches. Technically, I've had headache constantly since I was ten. Not even exaggerating. XD I could set a world record I bet! Maybe not. >.> But still. It's usually not too bad. When I get migraine type headaches I can't touch, I sometimes go to the ER. Usually only when it gets to being so bad I'm delirious or can't stop crying, or both. But you could always try that. They'll usually give you IV anti-emetic and then a strong painkiller through IV. It should at least take the edge off for most people. Or at very least make you high. XD (The first time I went to the ER for one, they gave me demorol, which I guess I'm a lightweight when it comes to such drugs, because one dose and I was like incredibly high... it was hilarious. Though... I don't condone drug seeking, it's a funny side effect sometimes.) But if it gets bad, you should try that.

What drugs have you tried for migraines so far?


itsalovestory0x wrote:
My depression/anxiety are definitely chronic. I hate having no support from hardly anyone around me. My poor excuse of doctor NEVER gives me real help even though I tell her what's wrong with me. It's always "oh you'll feel better if you exercise". I DO exercise and this past time I told her I have been; she told me to increase the exercise to 4-5 times a week. She also constantly tells me to lose weight and that just makes me feel even worse, especially since I'm trying to do that.


O.O Sounds like you need a new doctor. Anyway you could find one? She sounds like a bitch, and in my experience, having doctors like that, they eventually make something worse one way or another.
I also hate that being doctors answers to everything. Some of my doctors at this point have told me I SHOULDN'T overexert myself, but others tell me it will cure me (which is so not true; this all started for me when I WAS an avid athlete, several hours of practice everyday, so don't tell me my illness was caused by me not exercising, stupid. >.>) and it's the most annoying thing in the world. For some reason it seems like half of doctors no matter what specialty INSIST that exercise is the cure-all for fucking ANYTHING. And come on... even I'm not THAT stupid. I could list probably a hundred things it's NEVER the cure for, and with things like headaches, pain, mental illnesses, it's a possible treatment in SOME cases, but those things aren't "one size fits all", it's not gonna be the thing to cure everyone.

Seriously though, you need to find a new doctor... if she's not doing anything for you, it's probably not worth wasting your time with her.



Topamax has really helped me. I recommend it.

_________________
Red for the blood of life
White for the purity of Spirit
Black to repel all negativity

Water Cleanse and renews
Water washes away pain and sorrow.
Water blesses and creates harmony.


Back to top Go down
HeyThere
Moderator


Posts: 213
Reputation: 9
Join date: 2011-01-26
Age: 17
Location: Virginia D:

PostSubject: Re: Chronic Illness Chat and Support   Fri Feb 18, 2011 2:29 pm

Ellipsis wrote:
BatteredAngel wrote:
I have very severe depression, labeled under "dysthymia". I've actually had severe depression/ suicidal tendencies for the last 12 years. I guess you could say its chronic. Not really sure :/ That's kinda the reason I disappeared for several days. I just couldn't find the will to move.

I do suffer from chronic migraines. They never haven't figured out what causes the migraines but I'm currently on an anti-epilepsy medication that helps for the most part.


I'm sorry. It sucks. I was diagnosed with MDD (Major Depressive Disorder) myself a few years back, but now they're thinking it's a symptom of whatever physical illness I may have. Of course we don't really know, so who could ever tell? But it definitely suck. I have a lot of days like that lately. Though, more recently, I suppose I have more days where I can't move for the pain, but before that was a big issue for me, I had plenty of days when I couldn't get out of bed because I couldn't find the motivation. I still do occasionally, but I suppose everything else going on for me has sort of been a distraction. And it motivates me in some ways. If I don't get up, I can't have pain meds, if I can't have pain meds, I'll just suffer. If I lay in bed all day, I'll be too stiff to move on my own after a while. >.< So that sort of has solved a lot of that issue for me. Because there are pretty severe consequences if I don't get up.
Though, I wouldn't recommend a physical ailment like that as a way to motivate yourself. XD

I also have "migraines" I think, though while sometimes they'll be textbook (light/sound sensitivity, nausea, vomitting. etc.) sometimes I'll only ever have pain, which technically supposedly is not a migraine, so there may be some other cause for my headaches, we're unsure. But those also are terrible. I'm on pamelor right now, and it's not working well. I've been wanting to try Topamax, so I might ask about that next time I see my internist. Or when I go to see the neurologist.


HeyThere wrote:


I GET MIGRAINES FROM FUCKING HELL. IVE HAD THE SAME MIGRAINE I HAVE RIGHT NOW FOR 8 FUCKING HOURS. my longest was 3 days. my medicine doesnt work anymore. mines genetic- my sis and dad have them too. BUT THERE FUCKING MEDICINE FUCKING WORKS.

pardon my language.


I hate those sorts of headaches. Technically, I've had headache constantly since I was ten. Not even exaggerating. XD I could set a world record I bet! Maybe not. >.> But still. It's usually not too bad. When I get migraine type headaches I can't touch, I sometimes go to the ER. Usually only when it gets to being so bad I'm delirious or can't stop crying, or both. But you could always try that. They'll usually give you IV anti-emetic and then a strong painkiller through IV. It should at least take the edge off for most people. Or at very least make you high. XD (The first time I went to the ER for one, they gave me demorol, which I guess I'm a lightweight when it comes to such drugs, because one dose and I was like incredibly high... it was hilarious. Though... I don't condone drug seeking, it's a funny side effect sometimes.) But if it gets bad, you should try that.

What drugs have you tried for migraines so far?


itsalovestory0x wrote:
My depression/anxiety are definitely chronic. I hate having no support from hardly anyone around me. My poor excuse of doctor NEVER gives me real help even though I tell her what's wrong with me. It's always "oh you'll feel better if you exercise". I DO exercise and this past time I told her I have been; she told me to increase the exercise to 4-5 times a week. She also constantly tells me to lose weight and that just makes me feel even worse, especially since I'm trying to do that.


O.O Sounds like you need a new doctor. Anyway you could find one? She sounds like a bitch, and in my experience, having doctors like that, they eventually make something worse one way or another.
I also hate that being doctors answers to everything. Some of my doctors at this point have told me I SHOULDN'T overexert myself, but others tell me it will cure me (which is so not true; this all started for me when I WAS an avid athlete, several hours of practice everyday, so don't tell me my illness was caused by me not exercising, stupid. >.>) and it's the most annoying thing in the world. For some reason it seems like half of doctors no matter what specialty INSIST that exercise is the cure-all for fucking ANYTHING. And come on... even I'm not THAT stupid. I could list probably a hundred things it's NEVER the cure for, and with things like headaches, pain, mental illnesses, it's a possible treatment in SOME cases, but those things aren't "one size fits all", it's not gonna be the thing to cure everyone.

Seriously though, you need to find a new doctor... if she's not doing anything for you, it's probably not worth wasting your time with her.


I started out being with OTC drugs when I was younger but that was bc I was like... 12 I've tried prescription medications but they never really worked. I cant remember the exact named bc it was a while ago but they were pretty standard ones. I was supposed to get an MRI... But that hasn't really happened yet... So... Yeah. I've actually been using Excedrine (just the OTC stuff) and it actually works really well,
idk if you have seen the commercials for them but it does work. But lately it's been not working too well.. Probably bc of my body getting used to it. I usually only have to take one or two but the really bad one i had last night i had to take three (but Im not dead soooooo...)

_________________
Only a Sith deals in absolutes. -Obi-Wan Kenobi
-
A Jedi shall not know anger. Nor hatred. Nor love.
Back to top Go down
Online
whereismyhat



Posts: 158
Reputation: 8
Join date: 2011-02-06
Age: 20
Location: Lilla landet lagom

PostSubject: Re: Chronic Illness Chat and Support   Fri Feb 18, 2011 2:53 pm

Well, I always figured chronic illness was an illness you had your entire life, and not always untreatable it was uncureable, but hey, I learned something new today!

By that definition, I guess one could list a few things that have been going on in my life for the past 8-9 years. I've been diagnosed with depression, although that was almost four years ago and I've not kept in touch with the psychiatric health care in those years, mainly because my psychologist and I did not get along but also because now I'm legally an adult and have to go to ''Adul Psychiatry Care'' as it's called here, and the closest clinic is about at least 2 hours away and costs money. Seeing how I don't have any means of transport except by bus - which I do not have time for with school and all - and I'm basically broke, and I don't want to ask my parents for financial or transportational support since my mom would just freak out if I told her I still wasn't fine, I've just never really bothered.

But my depression started when I was 11, and it has been coming in leaps and bounds since then, with episodes in between of good/normal mood, first I had the symptoms for a year until they spontaneously disappeared, and I felt fine for another year, then I relapsed for three years, began therapy, felt even worse, then it was alright for a few months, then relapse, alright for about two months, relapse, alright, relapse and now it's alright again. My bad periods have varied in severity, it's been debilitating in my school life - I've flunked at least 9 classes and have more than a 60 % absence from most school years - and my social life, sometimes I can't stand to be alone and hang around my friends everyday, other times I isolate myself, it can go as far as me not even managing to have telephone conversations or talk to people on MSN. It's affected my interpersonal relationships as well, as according to my psychologist I also have anger management issues, and I'm just an overall oversensitive person, or I get apathetic and underinvolved in the people I love.

It's been a rollercoaster alright, but my positive episodes, like the one I'm having now, make me feel like all the things I've been told of how it's just a phase or hormones I just don't really take it all that seriously. One guy even suggested that birth control pills would stabilize me and solve most of my problems, so I guess I'm just whiny. On top of that I got diagnosed with anorexia, which I feel started at around 13, and I was let go after 10 weeks of therapy, considered fine, but I've never felt completely fine. Mostly the thoughts have stayed, lesser sometimes, greater at others. There have been two periods when I've been feeling healthy and ''normal'' again, with no eating disordered thoughts or behaviours whatsoever, but I've had a handful of relapses ever since I got treatment. I don't know. I don't think one ever really recovers from such a thing, it's changed who I am and my way of thinking and I think there's always going to be a trace of the disease left.

I've had other problems, sleeping related and obsessive compulsive ones, changing in severity since I was 13 and 11 respectively. But I guess it's alright. What bothers me now is that my anger, which has been a constant part of me my whole life, is suddenly gone. It just freaks me out not knowing what is going on. But whatever, I guess, I'm considered healthy and right now I'm mostly symptom free.
Back to top Go down
Killer Queen



Posts: 18
Reputation: 0
Join date: 2012-01-19
Age: 18

PostSubject: Re: Chronic Illness Chat and Support   Thu Jan 19, 2012 1:57 am

I've had my depression for around 7 years now and despite treatment, it's hardly changed so I'm guessing that would be chronic and personality disorders...recent diagnosis of Sktiziod which is too early to be called chronic but I'm thinking that my Borderline diagnosis would come under chronic illness. I don't know. Either way, the illnesses are still there.

It really fucking pisses me off (sorry, is swearing allowed) how the mental illness rate has gone up in Australia and instead of doing SOMETHING about it, they minimize the number of visits to a psychological professional so now you see them 10 times a year (on medicare) and then you have to pay yourself. 10 visits is hardly "treatment" and I use up my visits really quick, like by march, we have to start paying. It's just ... really expensive and it makes me feel really bad because in my large family, we are already paying for dental fees and last year we struggled with that and my psych appointments AND having 5 children at school, 3 in high school. It's just too much... affraid
Back to top Go down
 

Chronic Illness Chat and Support

View previous topic View next topic Back to top 
Page 1 of 1

 Similar topics

-
» LETS CHAT :D
» Chronic Illness Chat and Support
» Adoption & Fostering in the UK - Chat Room
» Stylish symbols support by avacs live chat
» My experience with Omegle.com chat

Permissions in this forum:You cannot reply to topics in this forum
 :: Well-Being :: Health-